Wednesday, June 15, 2011

In the begining.

I'm gonna start off this blog with a little history of my diagnosis of gatroparesis.

In June of 2007 I began suffering from nervous breakdowns.  I had suffered a total of 4 from June to December resulting in the loss of my job for my many absences.  My phyciatrist (referred to here after as my psycho dr) began prescribing me heavy anti-depressants: Lithium, Trazadone, Depacote, Klonapin, Effexor, and the list goes on.  The lithium shut down my liver, hospitalized for 2 days while they began to function again. In September of 2009 my hair began to fall out and I began vomitting all day long, there was no relief for my anxiety and depression, I began to believe I suffered from Bi-polar disorder and this was how I was having to live my life. Very depressed, I spent all  day sleeping and trying to escape the horrible stomach cramping and vomiting. Psyco dr gave me seroquel, adavan, and ambien, just dealing with the deperssion, he was convinced I was suffering side effects when I would mention the vomiting and upset stomach. (He said the upset stomach was from anxiety).  Before I knew it, I no longer knew what end was up, so doped up on these heavy meds, I relinquished custody of my youngest son, age 2 at the time, to his father, knowing I was not able to give proper care for my beloved son.  My life became a mix of vomiting all day, upset stomach and trying desperately to escape it all.

In January of 2010 my family Dr. could stand by no longer and started a long list's of test's to get to the underlying issues of the physical symptoms I was suffering from.  Neg for allopecia, but my hair continued to fall out. Stomach scope, rectal scope, blood tests, echo cardio, thyriod gland.  Then a test, gastric emptying test, HOORAY! my stomach is 85% paralized.  No wonder any meds my psycho dr put me on gave me no relief!  In March of 2010, my son's father filed for full custody of my son (wasn't that nice of him, me so sick, so lets take the woman to court and take her son away, and he reported me to Health and Human Services for not having custody of my son.  He only had him in his full time care for 3 months at this time).  My family Dr prescribed Reglan for the diagnosis of Gastrparesis.  End of March I made the choice to go "in house" and detox from all the heavy psycho drug I was on.  The closest hospital equipted to handle a safe detox was in another county than the one I resided in, and would not admit me.  I landed in a half-way house with no medical attention to detox, just a place where people are sent if they are suicidal and need to be babysat.  Only 103lbs, sick from withdrawls, my muscles slowly began to stop functioning. I wasn't able to dress myself, lift a fork to my mouth, hardly walk.  My psycho dr instructed the people in this half-way house to not help me, I was attention seeking.  I had to sleep on top of my covers because none of the ladies would even help me cover up.  When I phoned my psych dr and asked for a small amount of adavan to help with the high anxiety a person suffers in detox, he wrote in my record that I was drug seeking and had to stay in that horrible place longer! I cried, I thought for sure my life was gonna be spent in a nursing home for the rest of my life.  My family Dr. sent me to a nuerologist, he recommended to stop the Reglan.  AMAZING! after only 1 day my function slowly began to return!  Smiling, and making sure all the ladies, who would not help me, knew how wrong they were.  I finally was released from that half-way house and NEVER saw my psycho dr, or therapist again!

The gastroparesis was reconfirmed by a specialist.  I have shared placement of my youngest son.  My condition is not fun, but I manage it ok.  Another trip to my specialist will happen in July because of the difficulty of nutrition, and the strain my low pottasium levels are putting on my heart..  I was just denied disability and I live with what little I can afford.  My daily life schedule looks like this; (don't read if you have a sensative stomach)  If I'm able to eat, I usually do about 5pm, knowing that in 4hrs I hope to sleep.  If I do vomit up what I can't digest, it's at night, or first thing in the morning, once I'm done vomiting, I can take my prilosec, anti anxiety, and erythormyacin (proven to help the stomach move).  Being on an antibiotic regualarly kills all the good bacteria in my digestive tract, so another hour or so near a bathroom for the runs.  Usually able to leave the house by noon, always making sure where I'm going, a bathroom is close by.  I can tweak my schedule so I can care for my 2 son's and engage in their busy lives, it's not easy, but it's me!

3 comments:

  1. Holy Cow! Where to start? I hate that doctors find it so easy to prescribe a pill rather than try and find the root of the problem. It just makes me crazy, when they assume the patient is crazy.

    What a fighter you are! Oh wait your a marine! Hoorah!

    I'm sure your kids have a lot to do with you fighting so hard. They are very precious cutie pies.

    Do you keep a journal of what you eat? Maybe you can find something your stomach will tolerate. My guess is you already do that.

    Sending hugs and calories. hehe :)

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  2. Hugs hun. I don't know you, you started following me in Twitter and I was curious (@victoriak68 is me) But damn! That f'n psycho dr. needs his license revoked! As for the ex and all the support he has shown you during this...I guess that's why he's the ex, eh?

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  3. Yep, that's why he's the ex! I just took him back to court because he was taking my lil 4yr old "out to dinner". When in reality, him and his girlfriend would sit @ the bar of the restuarant, for a couple hours, drinking and gambling away, teasing my lil one that the bartender was his "girlfriend"! (hint: If ya ever want to know what the other parent is doing with your preschooler, give the kid a camera) The custody order now states that no individual can consume alcoholic bevs and drive while my son is in their care. As a mother I had to protect my child! Thanks for reading and I'll be posting more!

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